Step 1. Explaining MG for the First Time
MG can be difficult to put into words.
When talking to a friend or loved one, explain what’s going on medically, all the different symptoms, how much they can fluctuate ... It’s a lot for anyone to learn. Plus, their minds may be racing with questions. Give them a minute. Remember that these are the people who care about you. You want to take them with you on your MG journey. It took you a while to understand what you were dealing with; it may take them time to process as well.
Start with the basics and talk simply. Don’t get too detailed or clinical. You could say, “MG is a muscle weakness. Muscles are controlled by nerves. If the nerves can’t send signals to the muscles, they can’t work properly. MG symptoms vary from person to person, from day to day, and even from hour to hour.”
You could also try an analogy. Here’s one to consider:
When you have MG, using your muscles is like ringing a doorbell with faulty wiring. Sometimes the bell rings just fine. Sometimes it doesn’t ring correctly. And sometimes it doesn’t ring at all. MG creates the same kind of unpredictable communication between the nerves and muscles. It’s why a person with MG can look fine but not feel fine. Or feel okay one minute and not the next. People with MG are a lot like that normal-looking doorbell that sometimes can’t ring.
That’s just one analogy. You can probably come up with a better one yourself. After all, when it comes to your experience with MG, you are the expert.