Plan Ways to Conserve Energy
There are many things you can try to pace yourself and save your energy during the holidays. Prioritize doing what is important to you, then see where you can save energy in other areas. For example, if putting up holiday decorations is important to you, do it, but then consider ordering gifts online instead of going to a store.
Other potential energy-saving ideas include getting takeout from a local restaurant instead of cooking, or limiting your time talking to friends and relatives online or over the phone.
“Most important is to get good rest and opt out of chores when you’re feeling tired,” said Kim Paszkowski, a speech-language pathologist.
You also may want to enlist friends and family to help you with cooking, shopping or coming up with gift ideas. Or ask a supporter to help you set boundaries ahead of time to make sure you don’t overdo things.
“Figure out your plan and stick to it,” said Kim. “If you agree you're going to be at a gathering for two hours, be sure to leave after two hours.”
Even with a good plan, you still may get tired, and that’s okay. According to Diane, it’s important for people with myasthenia gravis to give themselves permission to feel tired.
“People living with MG, as well as their supporters, should avoid blaming each other or attaching negative beliefs to fatigue,” said Diane. “Feeling tired is not a reflection of character. It’s a symptom.”