Has your approach to living with MG and managing symptoms evolved over time?
My perspective of living with myasthenia gravis has definitely changed. Being re-diagnosed after remission was traumatizing. I thought MG was behind me. I had to make adjustments in my life. For example, I used to paint very large pieces, but with the weakness in my arms, I had to scale down the size of the pieces I worked on. Also, I’ve learned to prioritize what matters and let go of the things that don’t matter as much. That realization has helped me focus on my family, my career and my disease at different times.
I’ve had pretty much the same approach toward symptom management since they returned when I was 20. I try to rest often, get plenty of sleep and do things to reduce stress. I think MG taught me a lot about myself because my approach to managing MG symptoms hasn’t really changed, but my approach to life has.