Goal 1: Get to Minimal!
An ambitious goal for any person with MG is to get to a place called “minimal manifestation status.” This means you will not be limited in any way from doing the ordinary activities of everyday living. There may be some muscle weakness and maybe still some drooping eyelids. But your ordinary physical activity won’t be restricted. MG is not preventing you from walking, eating, driving, or doing a job involving light physical activity—in fact, light exercise can help improve your condition. This implies you’re able to tolerate the medication you’re taking.1
When people are initially diagnosed with MG, they usually begin with one simple wish: no longer having MG. That’s both understandable and appropriate. However, as you learn more about the disease and your particular case, you may find that minimal manifestations, with treatment that’s tolerable, is a more useful goal. It could be both more realistic and more useful in helping you to improve your daily life.
About remission: that’s when there is no muscle weakness or any other symptoms of MG at all. The only exception is that you may still have trouble closing your eyelids. No medications are necessary. Remission is very hard to achieve. But it does happen, and it is the best possible outcome.1